One of the most defining moments of our lives is when, in the womb, we embark on a male or female path. Disruption of typical male or female development, whether mild or severe, results in a spectrum of Disorders of Sex Development (DSD), which occur quite frequently, in about 1% of the human population.
DSDs can be stressful for families, and are often accompanied by additional medical and psychological problems, yet little is known about the causes of DSD and what healthcare teams should do in the short and long term.
Four medical centers (UCLA, University of Michigan, UCSF and Seattle Children’s Hospital) have joined forces and have designed a way to learn about the genetic causes and the psychological consequences of DSD. Our goal is to use these data to provide healthcare teams with procedures to evaluate and improve care for these patients and their families.
The National Institute of Health has funded a five-year grant "DSD-Translational Research Network" (or "DSD-TRN") to improve our knowledge and care for patients with DSD. This website provides information for patients, families, providers, researchers about our research endeavor.
To learn more about the specific aims of the NIH-supported grant, click here.
To obtain a referral to one of our clinical teams, click here.